Showing posts with label myeloma. Show all posts
Showing posts with label myeloma. Show all posts

Tuesday, March 10, 2015

Flesh and Blood Campaign encourages blood and organ donation

As someone who has received both blood and platelet transfusions as part of my treatment for cancer, I am delighted to see the Churches in Ireland engaging on such an important issue as blood and organ donation. 

Flesh and Blood Campaign  

Archbishop Richard Clarke and Archbishop Eamon Martin in front of a gift-wrapped cathedral in Armagh for the launch of the Flesh and Blood initiative

The all-Ireland campaign marks the first cross border partnership between churches and health services and it is designed to encourage church congregations and parishes to see blood and organ donation as a part of their giving. It also seeks to equip people as advocates for blood and organ donation, enabling them to raise awareness of the need for donors with their family, friends and community, potentially helping to save thousands of lives each year.
Archbishop Martin said, “The challenge of the ‘fleshandblood’ campaign – to see blood and organ donation as a part of our giving within the Church – is one I encourage us all to consider; that we might mirror God’s perfect gift to us in His Son by giving the gift of life ourselves.”
At the end of Friday’s launch, Archbishop Martin prayed for those involved in the campaign, and lit a candle in memory of all those who have given blood and organs down the years. He prayed for one of his own colleagues who has just become a live donor for his (the donor’s) brother.
The Armagh and Dublin events follow the joint 2014 Christmas Day message by the Archbishops of Armagh, which was broadcast on RTÉ television and radio, wherein they expressed their commitment to raising awareness of donation, and during which they met with blood donors and people whose lives have been transformed by organ donation.
(Source: www.catholicbishops.ie) 
If you have never given blood, please go to a clinic to see if you are eligible to do so. I had about 14 blood and platelet transfusions and in one six-month period in 2007 while being treated for myeloma.
If you don't carry an organ donor card - then please consider picking one up. 
Follow the conversation on Twitter @fleshandblood and on @catholicbishops.
Thanks for dropping by.
Brenda 
 xxxx


Friday, January 2, 2015

What's another year?

What's another year? 

It's huge! It's a celebration of life and love. It's another milestone for me as someone who quite frankly is lucky to be still here. 

This day 8 year's ago I gave in and went to my GP. I had been really sick all over Christmas and I knew that something was wrong. Bryan forced me to go to the doc as he had watched me getting worse and stubbornly refusing to leave the kids at Christmas - Emma was 9 and Cathal was 2. 

I had been vomiting since 8 December - on and off - and was getting weaker and sicker. 

So on 2 January 2007 I took the kids and went to the GP. Bryan had gone back to work. 

The GP told me I looked ghastly and took a whole series of bloods. She have me an anti-sickness injection. I had missed the blood courier so I volunteered to drive my bloods over to Naas hospital for testing/analysis. 

We went home and I put Cathal down for a nap and Emma and I put on a Christmas movie. I fell asleep ....

I was woken an hour or two later by a phone call which went like this: 
Doc: Brenda it's Dr Ciara here. Your bloods are back from Naas. 
Me: ok - that was quick
Doc: I need you to go to hospital 
Me: What? 
Doc: I need you to go to hospital 
Me: can I go tomorrow - I'm home alone with the kids (it was about 4pm) 
Doc: no, you need to get to hospital now
Me: What's wrong? 
Doc: your creatinine is very high 
(I knew that meant kidneys were in trouble) 
Me: can I go to Naas hospital later tonight or tomorrow? 
Doc: no we need to get you to Dublin to either James's or Tallaght today, now,as soon as possible. 
Me: really? 
Doc: I am writing your referral letter now so which hospital?
Me: Tallaght? 
Doc: ok can you come in to me to get the letter. 
Me: ok

I was stunned. I knew I was sick but it was so bad I had to go to Dublin? 

I sorted the kids and drove in to get the letter. I cried all the way in. The receptionist was so sweet to me and that made me cry even more. 

The letter was sealed but I opened it and scanned the bloods. They were bad. The diagnosis was kidney failure with a question mark beside it. I put it away and rang Bryan who was stunned it was something do serious. He left his office to make the journey home. I cried all the way home at the thoughts of leaving the kids. 

I got home and made dinner for the kids. I arranged for a friend to take Cathal and told Emma to pack up some stuff. I emptied the dishwasher and did some ironing (as you do).

Bryan arrived and we packed a bag for me too in case I was kept in. 

The doctor rang to see if I was on my way! That made me even more scared. 

We dropped Cathal off and headed for Tallaght A & E which is no fun at any time of the year but on Jan 2nd it was a nightmare. 

There was a guy in a suit liaising with patients to tell us how long we had to wait. After an hour or more I wanted to scream at him to stop telling me I was a major and would be seen ..... I was really miserable.

There were time wasters and people treating it like a social club. I remember one woman who had dropped a wine bottle on her foot in NYE and she was phoning her friends telling them to come up to A & E for the Craic.

I was feeling worse by the minute. I think the anti sickness injection was wearing off because I started vomiting and having explosive diarrhoea again which in very unpleasant to manage in a  public toilet. 

The triage nurse came out and took my letter. She was back 5 mins later to tell me they were preparing a place for me. When I heard those words the passage from John's gospel flashed across my brain "there are many rooms ..." It's a popular reading at funerals! I was losing it... 

Emma chatted away and Bryan worried. I was taken through to a bay after 10pm and I was sure I was going to be home later that night. 

By 11pm I had bloods taken and vitals were assessed. There was a lot of head scrAtching. They said it was most likely a virus and asked if I had been to Africa or anywhere else like that where I might have picked something up. They mentioned rheumatic fever at one point. 

I told Bryan and Emma to go home as it was so late. I was convinced I would be calling home in the early hours trying to arrange a lift. 

I spoke to a nurse at 11.30pm and asked her did she think I would get home that night? She looked at me and said: "no Brenda, you are a very sick girl". 

I settled in for the night in the cubicle ...running to the loo every 10 minutes and vomiting into my cardboard dish in between. I was given more anti sickness meds and put on fluids.

I was told I was dangerously dehydrated. Sure I had been losing any food and drink I ate since early Dec through vomiting etc

I had a haemoglobin of 7 which is why I was breathless and weak. 

Docs were shocked by my bloods and were amazed I was able to stand. 

I saw more docs and was eventually moved away from the A & E madness into a small side room for observation overnight.

They were pursuing the sickness as a virus but could rule nothing in or out. 

I often wonder looking back and knowing what I know now about bloods - did they know it might be cancer ? 

I never for one moment thought it was cancer. 

But it was. 

Thankfully here I am on 2 January 2015 - a date I never thought I would be writing.... 

Here's to good health in 2015. 


Saturday, September 27, 2014

Hearing the 'R' word for the first time

At times during my treatment for Multiple Myeloma (cancer of the plasma cells in the bone marrow), I wondered if I would live to see my next birthday, never mind living to hear the 'R' word (Remission) but here I am on Friday 26 September 2014 celebrating seven years of remission.

It's a feeling of indescribable joy really to still be here and to be mostly fighting fit. 

I was reading through my 2007 journal last night and this is what was happening seven years ago:

Wednesday 26 September 2007
DAY WARD RESULTS 

A couple of weeks earlier I had a bone marrow biopsy (ouch) to see if my stem cell transplant had worked and to see if the myeloma was gone. I attended the haematology day ward in Tallagh hospital for results. This diary entry was written at the end of that day seven years ago.

I can't describe how in bits I was this morning. I was wide awake at 5.30am walking around the house, pacing up and down. Sleep didn't come to easily last night either. I got very emotional with the kids this morning - I know they didn't really understand why. I was uptight, nervous and it was very difficult to speak any words that made sense.

I had decided to go to the hospital by myself and I know my family members weren't that happy but that's the way I decided to do it today. If it was bad news I would have time to absorb it myself before I had to break the news to anyone else. People knew I was getting my results today so my phone was hopping with texts all morning with good wishes and offers of prayers.

I dropped the kids to school and delayed a bit chatting to people - all the time prolonging the journey to Tallaght Hospital.

When I got to the hospital I had to have my regular bloods done so I headed straight to phlebotomy. Then it was up to haematology. I had a fair idea that some of the nurses knew my results but they couldn't say anything. I had to hear whatever the news was from my consultant Dr Slaby.

In fairness they all knew how nervous I was and they got me into a side room to wait for Dr Slaby almost as soon as they saw me. He arrived and was a bit concerned about the cough I have. I was sitting beside him and I could see the computer screen. I was afraid to look at it as he pulled up my results. My left hand was shaking so much that I had to sit on it to stop it. I glanced at him and then glanced at the screen and lots of numbers and words blurred in front of me but then I thought I saw the words 'no myeloma present in the bone marrow sample'. I thought I was seeing things so I closed my eyes and then he said the words: "We've done it. The Myeloma is gone'. I punched the air with both fists. I wanted to scream the place down but I somehow composed myself. I don't know how or why.

I honestly didn't hear a word he said to me after that - something about maintenance treatment. Then he realised I wasn't hearing him and he said - that's for another day. He said he was concerned about my cough so he insisted I hang around for an Xray. I was bursting to get out of the office and he eventually said that's it and we shook hands.

I ran out into the day ward and ran straight into one of the nurses who had taken care of me and I said 'I'm in remission' and she said 'I know' with a huge smile on her face. She hugged me and realised how badly I was shaking from shock so she put me into a side office and told me to dial 9 for a line out and not to come out or attempt to leave the hospital until I was a bit more settled. She said well done and left with a huge smile on her face.

Pic of me taken in Autumn 2013 

I dialled 9 and called my hubby Bryan but there was no answer. Then I dialled my mother and just as she was about to talk to me I cut her off. I couldn't work my mobile as I was all fingers and thumbs. Bryan rang me back and it was one of the most emotional moments of my life and I could hardly get the words out. I'm in remission I said and started to cry - tears of happiness. He said 'you deserve champagne tonight so that's what we will do'. It was just a moment of amazement I will never forget.

I called other friends and then my work colleagues as I knew people were waiting and there was such joy and love coming at me down the phone lines from family, friends, colleagues. My phone went into overdrive.

I switched the phone off and just sat by myself for a while taking it all in. I did it. I was in remission. All the awfulness, all the suffering and trauma, all the worry - I had done it. I was in remission.

End of diary entry 

I remember leaving the room and meeting the other nurses - they were all thrilled as they had all been willing me to be well. I owe my life to this team of amazing men and women in the day ward in Tallaght. There was no way to ever repay them for giving me my life back but I am determined to try by staying well for as long as I possibly can.

There was such joy in the dayward but we all had to mindful of people around me who were not receiving good news on the day I got my life back. I went off for my Xray and skipped out the door of the hospital. I wanted to stop everyone I met and tell them that I had done it! I am in remission.

I remember heading home down the N7 singing along to the radio. My daughter Emma who was 9 at the time knew that I was getting results on that day. I remember her school bus pulling up and seeing her walking across the green outside our house so I ran over to her and we just stood in the middle of the green hugging after I had told her the news. She was so happy for me.

It was such an incredible moment. At the time I had no idea that my neighbour was watching - she knew I was getting results that day and she dropped in a card later that day telling me that she had stood at her window watching this beautiful moment between mother and daughter unfold before her eyes. She said it was impossible not to cry!


That was seven year's ago today and there have been so many more beautiful moments that have unfolded in my life and I so grateful for every one of them. 

We all take things in our lives for granted - time being one of them.

I've watched my daughter grow into the most wonderful 17 year old girl. 


I've watched my baby boy grow into a charming and witty 10 year old. 

I'm getting to grow older with my hubby of 19 years. 

Time is the thing I find myself most grateful for. It's wonderful. 

Here's to continuing to kick cancer's butt and to savouring time. 

Brenda 

xxx


Monday, June 23, 2014

Cancer Demons


Most days I just get on with life - school lunches and school run in the morning, feed the cats, head to work, plan my evenings, prepare for my radio shows, attend meetings, try and get a walk in, collect the kids, make the dinner, do laundry, supervise homework and all the rest of the day to day chores that mums/parents do.

Most days I am so busy that I don't have time to think about having cancer. I don't have time to be thinking about the what ifs or the possibility that I have a shortened life.

Then there are the days when having cancer is all I can think about. Having cancer is the thing that permeates every waking thought and every deep dream while I am sleeping. But it's not so much the having cancer that bothers me or that keeps me awake - it's the thought of living with dying, the thoughts of having to say goodbye to a world that I really had planned to grown old in.

These thoughts are my cancer demons and most days I manage to keep them at bay but sometimes I let them win. I don't mean to...... there are just days when I am feeling low physically or feeling tired and they get the upper hand.

These cancer demons days are spent on the verge of tears. These are the days when I need extra hugs. These are the days when if anyone is particularly nice to me, I might just cry.........These are the days when I start to visualise the end and what it might be like. These are the days when I try to comprehend how my husband and kids are going to manage without me. These are the days when I wonder have I told them and shown them how much they mean to me. These are the days when I wonder have I given enough and done enough to be remembered by them. These are the days when I wonder should I write to them so as they have a card for each of their forthcoming birthdays (just in case). These are the days when I just want to stop and be and savour smells, sounds and sights all around me.

My cancer demons make me fearful about more pain and suffering. I've been there, done that and have the T-shirt! I have courage and faith but treatments are so harsh and have put me into freezeframe in the past. I am strong, but I am not sure I am strong enough to do it again and again and again.....

My cancer demons make me worry about my faith - I do have faith but I worry sometimes that it won't be strong enough to sustain me ........

I have confidence in the medicine and in the fact that there will one day be a cure for myeloma and all forms of cancer.

On these days when the cancer demons are at large, it can be difficult to visualise a future. I feel smothered by the all consuming need and wish to be around for my kids and husband and for myself. I find myself getting jealous of older people and the years that they have had..........The cancer demons make me feel pressure to do all I want to do and to fit in all the things I have not yet achieved.

The cancer demons make me draw a blank sometimes when I try to look at my future.........

Having cancer is a bitch
Having cancer demons is a total bitch

I have waved the cancer demons away for the moment thanks to feeling stronger today. I hope they will stay away for a while and allow me to get busy living rather than focusing on the fact that I might die sooner than I had planned.

Brenda xxxxxx











Sunday, June 8, 2014

Hair Today, Gone Tomorrow [Excerpt from Diary of a Stem Cell Harvest and Transplant]

Monday 4 June 2007
It's just three days since they harvested my stem cells and just over two weeks since my first liquid chemo - cyclophosphamide - and my hair is really starting to come out. It's so thin now that I really can't go out without something on my head. I don't mind so much. I am undecided about whether to get a wig or not. A wig is just not me! It's not like I present the news or am on TV elsewhere ... I don't need it for cosmetic purposes. I don't think it will make any difference to the kids - well I hope not.

Emma has a photo of me on her bedside locker. She said she wants to remember me with hair! I suppose it is her way of dealing with it. She has been so good with all that we have had to throw at her.

Cathal still won't let me out of his sight after being without me for two weeks. He keeps saying "you are my Mammy. I'm keeping you home.". That's tough to have to hear. I underestimated how all of this would effect him even though he is only 2 and a half.

I love my kids so much and I have great determination to be around for them as long as I can.

Tuesday 5 June 2007
Everyone went off to school and minders this morning. When I was making my bed I could not believe the amount of hair that was on my pillow. It's surreal. I thought I would cry once this process began but I haven't. That doesn't mean that I won't. It's a real in your face symptom of my illness but it is also a positive sign that my treatment is progressing. Bryan doesn't seem to mind whether or not I get a wig. I am lucky that he loves me just the way I am - and just the way I am at any particular time.

I remain undecided about the wig:

"To wig or not to wig
that is the question"

I got out of bed this morning
my hair decided to stay
as I pulled on my top and trousers
it spread itself out in the sun
It was strange leaving the room without it
We're usually inseparable! 

 [apparently I wrote this 'poem' in my journal]

Wednesday 6 June 2007
I was coming to terms nicely with having less and less hair. Then I swear a girl with hir the length and thickness mine used to be was standing outside the house talking to a neighbour. Just at the moment it hit me hard that it's going, going and almost gone. I miss the weight of my hair, the feeling of it as it dries off after I wash it. I miss the smell of the shampoo in my freshly washed hair as it billows around me. I do miss it.

Cathal came over to me this evening and handed me two large clumps of hair, told me to put them on my head and said 'there you go now' before walking away.

Thursday 7 June 2007

Today was a hospital day. Dropped the kids to school and minder and got to Tallaght Hospital early. My line and stitches are really itchy. They cleaned the line (this is the central line in my chest that they used for the stem cell harvest and will use again for the transplant). They removed the stitches too and the relief was wonderful. I have been dying to give them a good old scratch but I somehow resisted.

Blood results were good and they say that I am looking well.
I needed a wrist Xray to use as a marker !!!!!

My hair is still coming out in clumps and I am wearing one of those horrible bandanas that I bought from the wig woman when she came to see me. They have phoned me again asking if I want a wig but I have no answer for them as I am still undecided.

I am getting very close to just cutting what's left of my hair off. I have three comb overs and it's just not a good look!

Friday 8 June 2007
My hair is a disaster. I put my hand to the back of my head today to sort out a tangle and it felt like the whole back of my head came away. It didn't! It was just a huge clump of hair - one of the comb overs! I had a shower and more of my hair came away. I decided it was time. I went into the downstairs bathroom where there is a small mirror and no window. I cut off the comb overs and the last few bits of long hair. Then I used Bryan's head shaver and did a complete once over on my head with my eyes closed. I just couldn't look! Then for good measure I got the dyson hoover and gave my head a once over to get rid of all the last bits. Bet that's not on the instructions and uses for a Dyson!

After it was done I was too scared to look in the mirror. I put my glasses back on and looked up and it was shocking. I almost did myself a neck injury trying to look all the way round to the back. I am an egg head, a baldie.

I left the bathroom after what felt like ages. I was even afraid to let the cats see me in case I scared them. They didn't move a whisker. I walked around the house for a while - BALD. It felt strangely liberating to be free of the clumps and the comb overs.

Not sure how the gang will react but I will cross that bridge later.

[This is transcribed from my diary as I wrote it in June 2007 when I was dealing with all the fall out from being diagnosed with Myeloma - a cancer of the plasma cells of the bone marrow. I have not edited this or changed anything.]

 A few year's after my treatment I was inspired to write a short story based on my hair loss experience called 'Well if Sinead O'Connor can live with it'. You can hear me read the story on my Audioboo account at the link below:

https://audioboo.fm/boos/369931-well-if-sinead-o-connor-can-live-with-it-by-brenda-drum

PS My hair grew back really quickly and is as long and thick as it ever was!

Friday, May 23, 2014

Excerpt from Diary of a Stem Cell Harvest - No Editing, No Filter!

This time seven year's ago I was in the middle of a two-week process of harvesting my own stem cells. I was reminded of this yesterday at a talk I was giving on Lough Derg about living with cancer.

I thought I would share two actual diary entries that I wrote as I was going through the stem cell harvest process on 23 and 24 May 2007. This is exactly as I wrote them in my journal - no editing and no filter:

Wednesday 23 May 2007 DAY 3

1.30am, the early hours of this morning the awful nausea turned into actual vomiting - gut wrenching vomiting. I was attached to the IV fluids so by the time I realised what was happening I only had time to unplug it and make it to the sink in the room and not the bathroom. Eugh
It brought back memories of the awfulness of the sickness I had last December. I was dripping with sweat and my new surgically inserted line started to ooze - so painful. What a horrible feeling.
I did manage to get back to sleep but I had a lot of pain and was generally very miserable.
When I saw the doc early this morning he said he would write me up for some strong anti-sickness meds. Liz came down and she was unhappy that I was allowed to be so sick so she got onto it too.
I threw up again at 3pm - really bad, really painful - it was my own fault. I should not have drank a can of LILT - but I was so raw and thirsty.
I decided to walk down to the shop and was asked by one of the nurses to get a paper for the man in the room across from me - JOB done, after a tentative walk......
I had a visit from a medical student who had to assess me. He asked me at the end if I was a doctor or worked in medicine - Ha ha! Doctor's coat anyone?
PS Cyclizine drug is my new best friend - no more sickness today.

Thursday 24 May 2007 DAY 4

EVERYBODY HURTS SOMETIMES
NEW SERIES OF GREY'S ANATOMY TONIGHT  (for some reason I have that written on the top of the page - no idea why)

I woke up with this morning with a great sense of relief. I slept well apart from couple of trips in the night - false alarms. I wasn't sick so the new anti sickness drug is working. Cyclizine is working - what a relief. I have to remember to get scripted for this in advance of the next set of chemo. NOTE TO SELF WRITTEN

I had jelly and ice cream for lunch. I couldn't eat anything else. I did the scene from Jurassic Park with the jelly shuddering and shivering on the spoon in the girl's hand. Screen test anyone?

The nurses and doctors are lovely. They are so caring especially when they see how miserable you are. They just can't do enough for me. I have nothing but respect and admiration for them.

Saw Dr Enright - she is happy with me and my response.

Emma came up (that's my daughter who was 9 at the time) and I know she misses me. She is full of questions about my line in my chest and the meds I am on and constant fluids. She is such a gorgeous girl. Bryan said I appear to me much better, more relaxed about my time in hospital this time round. I guess I am more relaxed as I had notice that I was going to be admitted and had read up on all that was going to happen so I was able to plan.

Friday 25 May 2007 DAY 5
ELECTION

Another good night last night. I think I was up twice for two more false sickness alarms. Very vivid dreams. Bryan was telling me that Cathal has learned how to climb up and into his cot so I guess that now means he can climb out too! Oh O!

I am in good form today. I asked the doctors about getting out for day release and he has to check with the consultant. I doubt she will say yes. I am still on the anti sickness drugs and am scared what will happen if I come off them. I am now on the other injections into my stomach for helping to mobilise my stem cells.

My Mum told me that Emma sat Cathal down and was explaining to him that I now have a line sticking out of my chest and telling him he can't touch it and needs to be careful and gentle. He said I will be careful and I won't pull it. I am aching to see him.

I had a great chat with Emma tonight. She is just adorable and I hope that I am and can always be the mother she deserves.

I am so excited - just found out I am allowed out for a few hours tomorrow.

Cathal phoned with the help of Bryan at about 9.30 tonight and said: "Where are you Mammy? I miss you." I thought my heart would break. Then he said "Love you Mammy".

Are there any nicer words to hear from your child?

Signing off for the night.

Ends

I kept a journal faithfully during my year of sickness and I am hoping to publish it soon as a book called LIFE FINDS A WAY.

Follow me on Twitter @BrendaDrumm


Monday, July 1, 2013

Please Choose Life

I am a big fan of the radio and it's always on in the car tuned to local, regional or national stations. The choice of show depends on who is in the car with me, my mood and whether or not there is a breaking news story that I need to follow for my work as a Communications Officer.

This morning I was in the car by myself travelling to work in Maynooth so I happened to switch channel at 9am to see who was on and who is away on holidays - it can be hard to keep up, especially on the National stations.

I heard Miriam on the John Murray Show and heard her mention Donal Walsh so I stayed tuned in. I had just pulled into the car park in work when her interview with Donal Walsh's parents began.

Now if you don't know who Donal Walsh is, then you missed an opportunity to listen to and to learn from an amazing young man who sadly passed away recently. Donal Walsh, while living with terminal cancer, went on National TV to talk about his desire to simply live and to plead with young people who so often and so readily choose suicide - to STOP and to choose to live instead of choosing to die.

You would have wanted to have a heart of stone to be unmoved by this young man and his parents who so clearly loved the very ground he walked on.

Anyway back to Miriam this morning and her interview with Donal's parents. Miriam took them back through DOnal's life and what he was like as a baby and then up to the point where he was diagnosed with a tumour in his knee when he was just entering his teenage years and when all he wanted to do was to play sport.

The interview was sensitive and you got a real sense again of the boy who had just made the transition from boyhood to being a man. I felt at times like I was sitting at their kitchen table as they got bad news, followed by good news and then more bad news. I was almost there with them the day they got the awful news that there were no more treatment options for Donal.

I cried as I listened to a father who back then was trying to be strong and for whom it still took every ounce of his strength not to cry today on national radio. I found it particularly hard to listen to Elma, Donal's mother as she spoke of her son. I know what sons are to their mothers, especially Irish sons as I am Mum to a little boy of 8.

The last think Donal's mother said today as Miriam signed off the interview was that Donal will be waiting for her ....... Those words will stay with me forever.

Her faith is so strong. Her joy in the short life of her son was palpable today.

Donal's parents said that he has left them with a lot of work to do - he started something while he was in his final few months on earth that I hope will in some way help and encourage young people to choose life. In fact I hope it will encourage people of all ages to always choose life.

I am living with an incurable form of bone marrow cancer and I know it is hard for those who love me. As I listened to Donal's parents today I thought about how I am on the other side of where they are - they are parents mourning their son. I am scared every day that I will be the parent of children who are mourning me.

It's very hard - impossibly hard and overwhelming at times.  I get angry when I hear of another person who has died by suicide. I can't help it and you will have to forgive my anger at people who I know are sick and suffering too - people who are in despair and who can't see a way out. I do my best to understand and I know that there is a black hole and people often can't help but fall into it but I have fought every day since my diagnosis on 10 January 2007 to live, to survive and to squeeze every last drop I can from this life. It's hard for me to understand a senseless loss of someone by suicide.

I hope that Donal's life and the witness he gave in the short time he had on earth can make people sit up and actively choose life especially in a world which so often seems to be weighed on the side of the culture of death.

I hope that I can grow old surrounded by the people who love me and whom I love.

For Donal, for me, for all those fighting cancer and other life-threatening illnesses - please choose life! It's always worth it.

 Ends

PS Never underestimate the power of radio!

Thursday, May 30, 2013

Happy Stem Cells Birthday to Me

This day six year's ago I was spending the first of two days in Saint James's Hospital in Dublin having my stem cells harvested as part of my treatment for Multiple Myeloma - a cancer of the blood/bone marrow. 

It was cutting edge to watch all the machines and the stem cells literally being sucked out of my blood as it was taken out and put back into my body through my central line. The care I received was fantastic and we had great fun despite me being sick with nerves and still a little sick from the chemo I had received the previous week. 

I was one of the lucky ones whose stem cells mobilised and were harvested. After two days on the machine they had harvested enough for not just one, but two stem cell transplants. 

The first of the stem cells in their little bag of life 


It was an extraordinary challenging and yet miraculous time for me and for my family. Each part of the treatment had its own side effects and problems but it was all well and truly worth it. 

I spend two weeks in hospital for the process of harvesting my stem cells and the second day of harvesting was on the Friday of the June bank holiday weekend. Even though I had been on the machines and had a very intensive day I persuaded them to send me home on the Friday evening - day two of the harvest - so as I could be around family for the long weekend.

On the trip from Saint James's Hospital back to Tallaght I was very woozy from the drugs and the effects of having my blood taken out and put back in so I said to the ambulance driver 'I would be a cheap date tonight - one drink and I would be singing' and he very quickly retorted 'what time will I pick you up at?'. It's funny what you remember from a day like that. 



Me and My Collected Stem Cells May 2007 


Here's to my wonderful stem cells which worked and which kicked cancer in the butt and here's to my stem cells waiting patiently for me in Saint James's should I need another transplant.

Onwards and upwards [well once I have today's hospital visit over]. LOL


Happy Bank Holiday Weekend and here's to health, the only wealth you ever need.